OK here's the deal....
Jul. 18th, 2007 06:40 pm![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png)
She DOES NOT WANT visitors. When she was still able to talk, she was adamantly clear that she did not want visitors. She doesn't want anyone to see her like this (adf she looks like hell). I only got an exemption today. Until this past weekend, we really thought she'd have a few more months.
She is not in any pain, and is drifting in and out. She was somewhat aware for a while this afternoon, and I went through the list by name of everyone who loves her and wishes her well. Jake is as well as can be expected. Her parents are with her, and Jake's parents are coming up on Friday.
We have no idea how much time she has left - but it is certainly measured in days at the longest.
I have not spoken of this before because she asked me not to. She wanted people to treat her like a person and not a disease. Also, once she got very sick, the times spent with friends were her escape - a time away from the doctors and the fear. She didn't want the two world to collide at all. I did not agree and I told her so, but I honored her wishes. The only reason I'm posting now is quite frankly, I think you all deserve to know and she can't really argue with me now.
While she was able, she made arrangements to have her body donated to medical science. There will be no funeral service, again at her specific request. There will be some kind of memorial service to honor her, probably in mid October, once we all have a little bit of distance, and so that out of town friends can make arrangements to be there.
I will still hold open house for movies/whatever for the next few Fridays so that people have a place to gather, until my band committments take me traveling again. For the GR crew - the last time I saw her in person she asked me to "take care of them", and I will do my best. Jake plans to continue gaming night in some form, obviously not right away.
The last coherent words she spoke to me last week were "You're not done with me yet!"
I know we all wish that she had been right.